Vol. 2, Issue 8  |  August 2011


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The Caregiver Coalition of Northeast Florida is a partnership between these organizations:


Community Hospice


Alzheimer's Association

Urban Jacksonville

Mayo Clinic Florida

City of Jacksonville


Upcoming Events


Family Caregiving Workshop
Saturday, Aug. 6, 9 a.m. to 3 p.m.
Moosehaven (Michigan Building)
1701 Park Ave.
Orange Park

RSVP: 904.407.7033
FMI: Download Flier


National Alzheimer's Project Act (NAPA) Public Input Session

Date and location TBD (in August)

Forum to solicit views and comments for U.S. Dept. of Health and Human Services to develop a National Alzheimer's Plan

Hosted by Alzheimer's Association

FMI: 800.272.3900


HBO's "The Alzheimer's Project" Documentary Screening, Part 1

Tuesday, Aug. 30, 7 p.m.


7620 Timberlin Park Blvd., Jacksonville

Hosted by Alzheimer's Association and Elmcroft of Timberlin Parc

RSVP: 800.272.3900


Thanks for the Memories

Saturday, Sept. 10, 10 a.m. to 1 p.m.

Jacksonville Zoo & Gardens

370 Zoo Parkway, Jacksonville

Celebration of Grandparent's Day with their grandchildren, including contests and awards ceremony

Seniors free with child's admission

FMI: 904.757.4463


Caring for the Veteran's Caregiver Workshop

Friday, Sept. 23, 9 a.m. to 4 p.m.

Community Hospice

4266 Sunbeam Road, Building 100, Jacksonville

RSVP: 904.407.6790



Caregiver Coalition of Northeast Florida Logo


Our Mission:


To promote awareness and knowledge of, sensitivity to
and support for family caregiving in Northeast Florida.


 Our Vision:


All family caregivers will have knowledge of and access to resources that support them and those in their care.



Beach umbrellaWelcome to the August Caregiver Connections! With summer vacations (and hopefully some of this heat!) retreating this month, school, football and generally busier schedules can't be too far away. We're a busy bunch at the Coalition these days, too, with two workshops planned for August and September (see below).


Although summer will soon wane, did you know that hurricane season stays with us until after Thanksgiving? If you read our June issue and put together your emergency kit, great job! If you haven't, now's the time to assemble your plan.


Speaking of which, did you know that you can check out back issues of "Caregiver Connections" on our website? Simply follow this link to the Newsletters page, where you can access every one of our e-newsletters ever published, including June's!


One more thing before we dive in. If you know someone who could benefit from this e-newsletter, sign them up by following this link. For those without access to the Web, we've got them covered with a print edition. To get on that mailing list, e-mail us with a name, address and daytime phone, or call 904.407.7400, Option 2.





It's not too late to get on board for the next "Caring for the Caregiver" family caregiving workshop! This Saturday, Aug. 6, we'll visit Moosehaven in Orange Park for a day full of information and tips, networking with fellow caregivers, a complimentary lunch and door prizes.


The program begins at 9 a.m. and goes until 3 p.m. Admission is free. RSVP to 904.407.7033 today, and to request free home care for your loved one, call 904.284.5977.





Veteran saluteFor Veterans And Their Caregivers:  Special Workshop Sept. 23

Caregivers of our military veterans are the focus for a special workshop the Caregiver Coalition and Community Hospice Veterans Partnership will co-host on Friday, Sept. 23 from 9 a.m. to 4 p.m. at Community Hospice in Mandarin.


We will welcome national speakers, including Deborah Grassman from Bay Pines VA Healthcare System and Margaret Kabat, the VA's national caregiver support program manager. We'll also cover topics such as Caring for the Caregiver, Spiritual Aspects of Caregiving and Social Service and VA Resources for Veterans.


The event is free and lunch will be included. To register or request free care for your loved one during the workshop, call 904.407.6790.





'Coaching Into Care' Helps Veterans' Caregivers Find Help 


Red telephoneFamily and friends of veterans who have post-deployment difficulties can tap into a VA program to connect their loved ones with government support and community resources. Coaching Into Care is a national clinical service providing information and help to veterans and the loved ones who are concerned about them.


For no-cost, confidential assistance, call 888.823.7458, e-mail, or visit the Coaching Into Care website.





CurrencyU.S. Caregiving Valued At $450 Billion, AARP Research Finds

If the unpaid contributions of U.S. family caregivers had a dollar value placed on them, they'd generate nearly half a trillion dollars in economic impact, according to an AARP Public Policy Institute paper.


The report, part of AARP's Valuing the Invaluable series on the economic value of family caregiving, estimated these caregivers' value at $450 billion in 2009, up from nearly $375 billion in 2007. The paper also reported that for 2009, about 42.1 million U.S. family caregivers cared for an adult with limitations in daily activities at any given point in time, and about 61.6 million provided care at some time during the year.


The report also explains the contributions of family caregivers, details the costs and consequences of providing family care, and provides policy recommendations to better support caregiving families. For more information and to access the full report, fact sheets and previous years' studies, visit the AARP website.





Coffee cupReview Senior Care Service And Drink Up At Starbucks!


Have you had an experience-good or bad-with a senior service provider, and want to share your story with fellow caregivers? is giving you a way to do that, and offering a $5 Starbucks gift card for your review.


Simply visit's Ratings & Reviews entry page and rate a service provider by August 10. Providers can include living facilities, in-home care, hospice providers and other organizations. The Starbucks card will be whisked to you via e-mail.






Social Security/SHINE Partnership Streamlines Services For Seniors


New SHINE LogoA new partnership between the Jacksonville South branch of the Social Security Administration and ElderSource's SHINE (Serving Health Insurance Needs of Elders) program is enhancing service to Medicare and Social Security beneficiaries, family members and caregivers in need.


Clients can now visit the Social Security Office at 7185 Bonneval Road, Suite 1

in Jacksonville and get one-on-one Medicare counseling from an experienced SHINE Volunteer. A Duval County SHINE volunteer staffs window 10 each Monday, Wednesday and Friday from 10 a.m. to 2 p.m., on a first-come first-served basis.


With the combined expertise of Social Security specialists and SHINE volunteers in one location, Medicare beneficiaries get the most accurate and timely information to resolve concerns - more than 100 since April. Plans are under way to add more SHINE volunteer counselors to meet the growing need, along with plans to extend this partnership to other SSA branches in Florida.


SHINE's unbiased and confidential counseling services are available at no cost to elders, people with certain disabilities and caregivers through ElderSource. Learn more about SHINE services or partnership opportunities by calling 800.963.5337.





Home Safety For Your Loved One With Alzheimer's Disease 


Worried seniorsAs caregiver to a person with Alzheimer's disease, you face a larger, ongoing challenge of adapting to constant changes in your loved one's behavior and functioning. It can be very difficult to predict what, or when, changes will occur in his or her condition. By taking a proactive approach to ensuring home safety for your loved one, you can reduce your own stress and find peace of mind.


Here are some things to consider:

  • Have you set the answer machine to turn on after the fewest number of rings?
  • Have you hidden a spare key outside?
  • Have you kept any potentially dangerous items out of the way?
  • Should your loved one become prone to wandering, rummaging or hiding things from you, how do you adapt your environment?

Our friend Pat Colvin from Colvin Health Group has some ideas that can help. You'll find the full article on our website,





Woman reading cardHelping Someone with Dementia Communicate


Alzheimer's disease and related dementias can gradually diminish a person's ability to communicate. People with dementia have more difficulty expressing thoughts and emotions. They also have more trouble understanding others.


Our ability to exchange our ideas, wishes and feelings is a basic need. Good communication is difficult to achieve for anyone, and it involves more than talking and listening. Communicating with a person with dementia requires patience and understanding. Above all, you must be a good listener.


To help the person communicate:

  • Be patient and supportive - Let the person know you're listening and trying to understand what is being said.
  • Show your interest - Keep good eye contact. Show the person that you care about what is being said, even when you do not understand what they are saying.
  • Offer comfort and reassurance - Let the person know it's okay. Encourage them to continue to explain their thoughts.
  • Avoid criticizing or correcting - Don't tell the person that their statements are incorrect. Instead, listen and try to find the meaning in what is being said. Repeat what was said, as it may help to clarify the thought.
  • Avoid arguing - If the person says something you don't agree with, let it be. Arguing usually only makes things worse.
  • Offer a guess - If the person uses the wrong word or cannot find a word, try guessing the right one. If you understand what the person means, you may not need to give the correct word. Be careful not to cause unnecessary frustration for the person with dementia or yourself.
  • Encourage unspoken communication - If you don't understand what is being said, ask the person to point or gesture.
  • Limit distractions - Find a place that's quiet, so you won't be interrupted. The surroundings should support the person's ability to focus on his or her thoughts.
  • Focus on feelings, not the facts - Sometimes the emotions being expressed are more important than what is being said. Look for the feelings being the words.

For more information on communicating with someone with dementia, contact the Alzheimer's Association at 800.272.3900.