Vol. 2, Issue 6  |  June 2011


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The Caregiver Coalition of Northeast Florida is a partnership between these organizations:


Community Hospice


Alzheimer's Association

Urban Jacksonville

Mayo Clinic Florida

City of Jacksonville


Upcoming Events


Family Caregiving Workshop

Saturday, June 4, 2011, 9 a.m. to 3 p.m.

Memorial Presbyterian Church
36 Sevilla Street
St. Augustine

 FMI: 904.407.6211
Download flier


Medicaid Managed Care Public Hearing
Tuesday, June 14, 9 a.m. to noon
Department of Children and Families
5920 Arlington Expressway, Jacksonville
FMI: 888.419.3456


Family Caregiving Workshop
Saturday, Aug. 6, 9 a.m. to 3 p.m.
1701 Park Ave.
Orange Park

FMI: 904.407.6211
More info coming soon




Our Mission:


To promote awareness and knowledge of, sensitivity to
and support for family caregiving in Northeast Florida.


 Our Vision:


All family caregivers will have knowledge of and access to resources that support them and those in their care.



palm treesWelcome to the June Caregiver Connections! While this month marks the official start of summer, we Floridians know from scorching car seats and straining A/C vents that the season arrived weeks ago. We urge you to take care to avoid the extreme Florida heat, and we've pulled together some information on valuable activities you can focus on indoors.


June also marks the start of the six-month hurricane season. How do you protect yourselves and loved ones from possible violent weather? Our friends at ElderSource have some ideas. You'll also find ways to tap into area support groups for caregivers of those with dementias and other challenging, chronic illnesses.


And remember, if you or someone you love needs this information in paper form, we can do that. Simply send us a name, mailing address and daytime phone number by e-mail, or call 904.407.7400, Option 2.


Happy reading! And as always, stay cool.



'Caring For The Caregiver' Returns To St. Augustine This Saturday

St. Augustine workshop in 2010Are you a caregiver who needs help but doesn't know where to find it? If so, help's coming your way this Saturday at the next "Caring for the Caregiver" workshop. Join us at Memorial Presbyterian Church in St. Augustine Saturday from 9 a.m. to 3 p.m. There you'll get lots of advice and tips on important, practical caregiving issues you can put to use right away.


You'll also meet lots of fellow caregivers, enjoy a complimentary lunch and a chance to win door prizes. For more information, download this flier. To RSVP or inquire about home care services for your loved one, call 904.407.7033.




Advocacy Alert: No State Cuts To Aging Home And Community-Based Programs 


Florida state capitolIn these tough economic times, as you may have heard on the news, Florida's 2011 budget process was not an easy one. Following its passage in May, however, the Florida Council on Aging (FCOA) reports some good news: no cuts to aging home or community-based programs benefitting Florida seniors.


Other highlights included:

  • Increases to the Aging & Disabled Medicaid Waiver, Nursing Home Diversion Waiver, Alzheimer's Respite Care, and PACE program.
  • Alzheimer's Disease Projects and Local Service Programs are now funded at continuation levels with recurring dollars as of 2011-12 budget (current-year funding is non-recurring).
  • The Medically Needy and MEDS-AD programs were not cut.
  • Cuts also were avoided in adult mental-health and substance-abuse treatment programs.

Just because this year's budget has passed doesn't mean there won't be future fiscal challenges to our seniors. Learn more about legislative issues on the FCOA's website and consider contacting your local legislators and the members of the House and Senate Budget Committees to continue garnering their support.




Public Hearing On Medicaid Managed Care In Jax June 14


AHCA LogoIf you or a loved one wants to learn more about Medicaid's Managed Care options or share your opinions, Florida's Agency for Health Care Administration (AHCA) is holding meetings across the state to collect public feedback.


The Jacksonville hearing will be Tuesday, June 14, 9 a.m. to noon at the Department of Children and Families (Main Auditorium), 5920 Arlington Expressway in Arlington. AHCA will make a presentation and then allow for public testimony.


For more information, call AHCA's toll-free hotline at 888.419.3456.




SmartphoneSurvey: How Can New Caregiver Smartphone App Help You?


Fast Forward Consulting is conducting a national survey to better understand the needs of caregivers as the organization develops a smartphone app tailored to caregivers.


Caregivers can take the short survey through June 20 online.




Summer Is On: How To Beat The Heat!


handheld fanThose lazy days of summer also mean days of blistering heat. As the temperatures rise, so does the risk of heat stress, which is particularly dangerous for people over age 65.


Older citizens do not adjust as well to excess heat because they perspire less and may have health problems that require medicines that work against the body's natural thermometer. A sudden or prolonged increase in temperatures can place a strain on the heart and blood vessels before the body can adjust.


When the heat is on, take immediate action. Dr. Robert Luchi, a professor of medicine-geriatrics at Baylor College of Medicine, offers these tips to help you beat the heat:


  • Keep cool. Air conditioning can be a lifesaver, especially if you have heart disease. If you don't have air conditioning, head to a cool shopping center, senior center, library, movie theater, or place of worship.
  • Cool baths or showers can provide relief. Ice bags and wet towels are also helpful.
  • Beware of dehydration; drink plenty of water, even if you're not thirsty.
  • Curtail physical activity during extremely hot weather. Activity adds to heart strain.
  • Avoid heavy meals and alcohol. Alcohol acts as a diuretic, causing your body to lose water.
  • Limit salt use.
  • Wear loose-fitting, lightweight clothing. Don't forget to wear a hat or carry an umbrella to protect your head and neck when you are outdoors.


Take the heat seriously. Dizziness, rapid heartbeat, diarrhea, nausea, headache, chest pain, mental changes or breathing problems are warning signs that you should seek immediate medical attention.




Hands togetherSpotlight: Local Alzheimer's Support Groups


If you're a caregiver to someone living with Alzheimer's and are looking for regular emotional, educational and social support, the local Alzheimer's Association Caregiver Support Groups can help.


These groups are designed specifically for caregivers and are led by trained volunteers, many of whom are caregivers themselves. They can help participants develop coping methods and maintain personal, physical and emotional health, as well as optimally care for the person with dementia. They also provide family members and caregivers a chance to build a mutual support system, share experiences and build friendships.


Meetings are 60-90 minutes long and are offered in a variety of locations--24 throughout north Florida.  Learn more about support groups by calling the Alzheimer's Association's Helpline at 800.272.3900 or visiting If you're interested in becoming a group facilitator, contact Stephania Sykes-Burns at 904.281.9077.




evacuation routeThe Caregiver's Game Plan Before Disaster Strikes


It's that time of year again when we all have to start making preparations in case of a disaster such as a hurricane. It's hard enough to do when we only have ourselves to worry about, but it can be even more overwhelming for a caregiver.


The key to keeping yourself and your loved one safe, according to ElderSource staff, starts with advance planning. As June is the traditional start of the Atlantic Hurricane Season, now is a great time to develop that plan, get help from your support network, gather needed supplies and assemble a supply kit.


You can read more about these four components of any disaster plan by visiting the Caregiver Coalition website, at